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Family of Fraja Ellie face anxious wait
THE family of a five-year-old girl who is battling a rare disease is facing an anxious wait to find out if her cancer has grown.
Fraja Simpson, of Leeming, North Yorkshire, has undergone MIBG scans at Leeds General Infirmary to see if her neuroblastoma with MYCN amplification tumour, which doctors say there have been only two similar cases of worldwide, has remained stable.
Fraja’s parents, hospital pharmacy assistant Michelle and Garry, an RAF flight sergeant - who hails from Consett, County Durham - have been told they must wait until Friday (August 23) before the results of tests, which involved a nuclear dye being injected into her hand, are confirmed.
In June, consultants stunned the couple by cancelling a second, stronger round of highly toxic chemotherapy for Fraja, after discovering the cancer was not presenting like most forms of neuroblastoma, saying the risks of the treatment, such as developing a secondary cancer and infertility, outweighed its benefits.
While the decision provided fresh hope for the RAF Leeming Community Primary School pupil, if it is found the cancerous cells her body have grown, then she would be classed as having relapsed, and her chances of recovery would be much lower.
Mrs Simpson said her family had all had difficulty sleeping ahead of the scans.
She said: “I have been waiting for this since May but dreading it at the same time, You get in such a turmoil.”
Mrs Simpson said the family had been buoyed by the generosity of thousands of people who had donated to the £500,000 Fraja Ellie Appeal, to fund relapse protocol treatment which is only available abroad, as it neared the £100,000 landmark since being launched in March.
Ahead of the tests, Fraja met the cast of Emmerdale at a charity match between the soap opera’s actors and Crakehall Cricket Club, near Bedale, where stars of the show pledged to help support the appeal and on Monday, Mr Simpson opened a Tesco Express store in the town, which donated £500.
Meanwhile, Corporal Joe Broadbent, of RAF Leeming, and a team of four other runners have raised almost £5,000 after completed a five-day 235km run across the Falkland Islands.
He said: “Knowing that Fraja desperately needs the money for treatment, the pain I went through is nothing to what the Simpsons are going through, and the support from everyone in the Falklands and wearing the shirt with Fraja on the front kept me going.”
To donate, visit facebook or send cheques to Fraja Ellie Appeal, RAF Leeming, Gatenby, Northallerton, North Yorkshire, DL7 9NJ.
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